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( Anderson Gwen ) - San Diego State University School of Nursing
Àü¸íÈñ ( Jun Myung-Hee ) - ´ëÀü´ëÇб³ °£È£Çаú ÃÖ°æ¼÷ ( Choi Kyoung-Sook ) - Áß¾Ó´ëÇб³ °£È£Çаú
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Abstract
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Purpose: The purpose of this micro-ethnography is to examine whether science and societal changes impact family communication patterns among a convenience sample of 16 Korean women.
Methods: The authors observed family communication in the context of a new breast cancer genetic screening and diagnostic testing program to detect BRCA gene mutations in Korean women at highest risk.
Results: Analysis of in-depth interviews and field notes taken during participant observation illustrated that communication patterns in families vary according to a woman¡¯s position in the family. If a grandmother tests positive for a gene mutation, her daughters make decisions on her behalf; they open and maintain the communication channel among family members. If a housewife is diagnosed with cancer and a genetic mutation, she immediately consults her husband and her sisters. The husband creates an open communication channel between his wife, his parents and his siblings. As a result, a woman¡¯s cancer is a concern for the whole family not merely a woman¡¯s secret or crisis.
Conclusion: Cultural differences are important to consider when designing new genetic service programs in different countries.
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KeyWords
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À¯Àü¼º À¯¹æ¾Ï, µ¹¿¬º¯ÀÌ, À¯Àü»ó´ã, °¡Á·, Ä¿¹Â´ÏÄÉÀ̼Ç
Breast Neoplasms, Genes, Genetic Counseling, Health Communication, Cultural Anthropology
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